One Month Until First Worldwide Net Cancer Awareness Day On November 10, 2010

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13th October 2010, 07:03am - Views: 526





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MEDIA RELEASE PR41716



One Month Until First Worldwide NET Cancer Awareness Day on November 10, 2010


NEW YORK, Oct. 13 /PRNewswire-AsiaNet/ --



                1st Global Call-to-Action at www.netcancerday.org


    The World NET Community announces the first Worldwide NET Cancer

Awareness Day on November 10, 2010 to raise awareness about cancers called

neuroendocrine tumors (NETs) and the need for timely detection and diagnosis.

More than 90% of all NET patients are incorrectly diagnosed and initially

treated for the wrong disease. Misdiagnoses or delayed diagnoses mean that

NET patients are treated on average five to seven years for the wrong

disease; often the correct diagnosis is not made until the disease has spread

(metastasized).


    The World NET Community, formed in Berlin in March 2010, is an

international community of patient advocacy groups and NET organizations from

around the world working together to raise awareness about NET cancers on a

global level.


    Global Campaign and Call-to-Action: Sign, Share, Follow & Fan

    To reach and mobilize a global audience, the campaign organizers have


Proclamation that visitors are encouraged to digitally sign to show their

support for the cause and the people they love. The site also includes

information about neuroendocrine tumors, campaign news and photos and a

calendar highlighting scores of events planned across the globe on or around

November 10, 2010. Through a dynamic social media campaign, including Tweets,

blogs and a Facebook page dedicated to Worldwide NET Cancer Awareness Day,

people from around the world are encouraged to log onto the website and join

the call to action


    -- Sign the Worldwide NET Cancer Awareness Day Proclamation

    -- Share the Proclamation with friends by e-mail

    -- Follow the Campaign on Twitter

    -- Fan the Campaign on Facebook


    Truly a global effort, the Proclamation has been translated into seven

different languages (Bulgarian, Dutch, French, Norwegian, Polish, Spanish,

and Swedish) to broaden the reach of the campaign messages.


    The website also offers other organizations a way to join the World NET

Community, download campaign resources and post their own Worldwide NET

Cancer Awareness Day events for more visibility.


Misc Miscellaneous The Carcinoid Cancer Foundation 3 image

    Information about NETs

    The incidence of neuroendocrine tumors (NETs) is on the rise globally.

While they are usually slow growing cancers, NETs are difficult to detect and

diagnose. They can occur in different parts of the body but are most often

found in the gastrointestinal tract, which includes the small and large

intestines as well as the stomach and appendix, and the lungs. NETs can also

originate in the pancreas and rectum, and occasionally from other areas.


    Neuroendocrine tumors, produce excessive amounts of hormones and include

carcinoid syndrome, Zollinger Ellison syndrome, VIPomas, insulinomas

gastrinoma, glucaginoma and somatostatinoma, among others. Symptoms may

include abdominal pain, flushing, diarrhea, wheezing, heart palpitations,

skin rash, heartburn, and weight changes.


    Worldwide NET Cancer Awareness Day organizers, including people with

NETS, healthcare professionals and patient advocates, hope that the effort

will raise awareness of these cancers and reduce the number of undiagnosed or

misdiagnosed tumors. For example, many patients with gastrointestinal

carcinoid are misdiagnosed with Irritable Bowel Syndrome (IBS) or Crohn's

disease.


    With increased awareness both in the healthcare and patient communities,

it is hoped there will be an improvement in the availability and quality of

diagnosis, treatment and care for NET cancer patients throughout the world.


    About the Worldwide NET Cancer Awareness Day Steering Committee

    Worldwide NET Cancer Awareness Day is an annual, awareness-raising event

coordinated by the Worldwide NET Cancer Awareness Day Steering Committee

(http://netcancerday.org/community/steering-committee/) at an international

level, and by patient advocacy groups and NET organizations at national and

local levels. The Steering Committee includes leaders of organizations from

Australia, Bulgaria, Canada, Germany, Norway, Poland, Singapore, Sweden, The

Netherlands, the United Kingdom and the United States.


    For additional information, a global press kit is available on

http://www.netcancerday.org and includes the following:


    -- Backgrounder on why early detection and diagnosis of NETs is critical

    -- Worldwide NET Cancer Awareness Day Proclamation

    -- Fact sheet about NETs

    -- List of Steering Committee members for Worldwide NET Cancer Awareness

       Day




    For further information, contact:

    --------------------------------

    Asia Pacific:

    -- Bill Claxton, williamc@cnets.org , +65-9012-4327

    Australasia:

    -- John Leyden, MD, infor@unicornfoundation.org.au, +61-1300-CURE-NETS

    Canada:


Maureen Coleman, Maureen@sympatico.ca, 1-416-544-8467



    Europe:

    -- Maia Sissons, maia@netpatientfoundation.com, +44-7595068998

    Europe, Germany:

    -- Inge Engel, inge.engel@web.de, +49-30-21-47-39-81

    Europe, Scandinavia:

    -- Agneta H-Franzen, info@carpapatient.se, +46-70-5955814

    United States, Eastern Time:

    -- Grace Goldstein, United States, carcinoid@optonline.net,

       1-888-722-3132 or 1-914-683-1001

    -- Maryann Wahmann, United States, carcinoidaware@aol.com,

       1-866-850-9555 or 1-516-781-7814

    United States, Pacific Time:

    -- Kari Brendtro, United States, kari@nanets.net, 1-360-314-4112



     SOURCE: The Carcinoid Cancer Foundation


    CONTACT: Asia Pacific: 

             Bill Claxton

             williamc@cnets.org

             +65-9012-4327


             Australasia:

             John Leyden, MD

             infor@unicornfoundation.org.au

             +61-1300-CURE-NETS


             Canada:

             Maureen Coleman

             Maureen@sympatico.ca

             +1-416-544-8467


             Europe: 

             Maia Sissons,

             maia@netpatientfoundation.com

             +44-7595068998


             Europe, Germany:

             Inge Engel

             inge.engel@web.de

             +49-30-21-47-39-81


             Europe, Scandinavia: 

             Agneta H-Franzen

             info@carpapatient.se

             +46-70-5955814


            United States, Eastern Time: 

            Grace Goldstein,

            United States

            carcinoid@optonline.net

            +1-888-722-3132 or +1-914-683-1001 or


            Maryann Wahmann

            United States

            carcinoidaware@aol.com

            +1-866-850-9555 or +1-516-781-7814


            United States, Pacific Time:

            Kari Brendtro

            United States

            kari@nanets.net

            +1-360-314-4112


 









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